The Human Fertilisation And Embrology Bill

As I was writing the last post in the Human Fertilisation And Embryology Bill, I realised eradicating deaf people would have far greater consequences than most people realise.

It would be in the interests of the Cochlear Industries, and hearing aid manufacturers, and other firms specialising in assistive listening technologies to get their fat arses behind the STOP EUGENICS campaign against the Human Fertilisation And Embryology Bill

All told, not does the Human Fertilisation And Embryology Bill affect Deaf people, it has serious implications for the livelihood of all the firms that produce their miraculous cures for deafness, and help the deaf to hear. Their cash cow would be effectively eliminated by medicine. Which has flow on effects, not only the CEO’s salaries, but the economy as a whole.

If anything, this is proof, just how much deaf people contribute to the economy.

Dame Baroness Deech, think again!

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Oh Lord! Praise Be They That Drag Their Knuckles…..

Oh Lord! Praise Be They That Drag Their Knuckles and Lag Their Brains. For theirs is the nadir of human progression.

Exactly what I thought when I read the latest media report on the Human Fertilisation and Embryology Bill,
Couples Could Win Right To Select Deaf Baby, by Richard Gray, The Telegraph’s Science Correspondent, but more accurately, a Misrepresentation [or Misinterpretation] Correspondent. Positions which are pretty common in the media.

Jesus’s last word’s on the cross, have special significance for me now. “Forgive them Father for they know not what they do!”

Now I’m not going to refresh your jaded minds about this Bill, or the resulting campaign, you can do your own reading and research, by going to the source, STOP EUGENICS. Nor am I going to regale you with stark illustrations of hearing ignorance as to what constitutes disability, and how often it’s not the deafness that is the problem, and how their world actually contributes to the many of their perceived limitations of deafness [indeed, disability]. If you ask anything of the hearing, don’t ask them to think! The mop up operation would be just horrendous!

What I am gonna do, if I haven’t already, is throw out all pretense of impartiality and bi-partisanship, and go for the jugular. Hearing people are stupid. Hearing people are stupid. Come on Deafies, repeat after me. Insert as many four letter words as you feel appropriate. Then repeat the mantra. But really, you don’t have to do this to convince yourselves of their stupidity, they have already convinced us. By responding to a media misrepresentation of the issue, with their own uninformed views. How clever is that?

The irony in the hearing response to the Human Fertilisation and Embryology Bill, is that are doing the exact same thing they accuse us of doing. You must remember, the scenario, if presented with two embryos, one with the hearing gene and one with the deaf gene, and they choose the hearing one, they have engaged in eugenics. They are just using the excuse of eliminating disabilities or other negative and undesirable traits as a guise for their eugenic act. They are creating perfect hearing people [that's an oxymoron if I've ever heard one. Where one says "I Believe", and the rest reply "Bah!"]

Now having said all that, and enjoying venting my spleen, there was one rather enlightening comment to the article, Couples Could Win Right To Select Deaf Baby, someone who actually understands and appreciates, the diversity and the glory of humanity. The quote speaks for itself. I can’t say anymore. I’m all vented out.

52.This is possibly the very point where the real debate on ethics in genetic research takes place; not cloning, not hybrids, but this. Since we began to unravel the secrets of DNA the question has surfaced time and time again; What if we could change this? What if we could change that? And then the final question, do we want to? There can’t be many who would want to see a child born disabled (and I can’t imagine many deaf or blind parents actually choosing this for their children, even if the option were available), but then disabilities are a fact of life. We are human not only because of our achievements and our improvements but because of our flaws. Take homosexuality, for example. On the surface it does nothing to advance the species, contributes nothing to our evolutionary journey, and yet it happens. Remove it from our genetic make-up, and what would the knock-on effect be? One geneticist once joked, “Less ballet”, but it could actually prove if not cataclysmic then at leist seismic. It is impossible to say how much of a part sexual desire and deviant (in the truest sense of the word) variations on that theme have had in our development over the centuries. Take away a significant aspect of human sexuality (an aspect present in almost every other warm-blooded species you could care to think of) and who knows what the end result might be? The same could very well apply to disabilities. While nobody wants to see a fellow human being struggle or suffer, it may just be possible that the role disabled people play in our society is a part of what makes us, well… us.

There’s more irony afoot this bill than is apparent. Particularly amongst the Human Fertilisation and Embryology Bill’s main proponents. I’m not going to elaborate on this one. You know how to use the net. You do the research.

Should I ever, highly unlikely, but please indulge me, if ever I am presented with two embryos. Both with the hearing gene. My question will be, is it intelligent. If the the answer is no, or they can’t confirm it’s intelligence, then I will direct them to destroy the frigging thing. There’s enough intellectually bereft hearing people in the world today, whose first language is “Bah!” add another “Bah!” and we can all sing, “Bah Bah Black Sheep!”

Readings Of Note:

Stop Eugenics
The Good Doctor
Disability Now Coverage
MEDIA WATCH: The Certainty Principle
Hearing Beethoven
The Right To Remain Silent
Telegraph on ‘deaf babies’ we are still failing to get the message across
Stop Eugenics
ANALYSIS: The HFEB & Clause 14(4)(9) Media Feeding and Talkback Frenzy: Part 4
ANALYSIS: The HFEB & Clause 14(4)(9) Media Feeding and Talkback Frenzy: Part Three
ANALYSIS: The HFEB & Clause 14(4)(9) Media Feeding and Talkback Frenzy: Part Two
ANALYSIS: The HFEB & Clause 14(4)(9) Media Feeding and Talkback Frenzy
Deaf People & Genetics: Media Coverage, Part 2
Deaf People & Genetics: Media Coverage
MEDIA WATCH: A Cacophonous Din of Ignorance & A Sane Voice [More Linx]

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Cultral Barriers or Disunity?

People often remark on the disunity exhibited by Deaf and deaf people, but at the same time, remain blind to the reasons for this.

Anonymous Deaf Law Student brings up this issue in their post Cultural Barriers? The blog post also touches on networking in the hearing world, which is of particular interest, due to the failure of Australian deaf Chamber of Commerce, which attempted to bridge this divide, but went nowhere fast for many reasons. This is an issue worthy of exploration in another post, but for now, I want to focus on the disunity between Deaf and deaf people.

It’s true. There is a disunity or schism between the Deaf and deaf worlds. The question Anonymous Deaf Law Student raises is an important one. One that needs some honest exploration. But it is rather shortsighted to place the blame on cultural lines, as this usually shifts the blame, via implication, onto the Deaf, and ignoring, and via implication, absolving hearing influences on this disunity.

This is not an argument for what is the best, or freedom to choose, communication method bullshit, that people regularly trot out when they wish to avoid an issue. For me, it’s a foregone conclusion, that sign, is the way to unify the disparate elements of the Deaf and deaf communities.

The point I wish to make is, no one asks the harder question, HOW to bring the two groups together. Think about this seriously, if Deaf people are expected to embrace deaf people for their all “individuality” then how will deaf people return the favour.

There’s no point in talking about respect if their are still undercurrents of revulsion or ambivalence about being Deaf, or using sign language. There is no point in talking about respect if the sanctity of speech and hearing are threatened by the idea of signing. There is no point in talking about unity when some devalue sign language by fobbing it off as not needing it. There is point in talking about respect, when we want to embrace the wider world, in purely aural terms, that threaten to sideline those who can’t. There is no point in talking about unity, when the underpinnings of that unity is technology, which threatens to sideline those who exercise their freedom of choice not avail themselves of that miraculous technology.

I’m all for unity between Deaf and deaf people, but not on aural terms. In embracing sign, one is not relinquishing their amorous embrace of the hearing world. Nor is one chained to their much abhorred idea of the ghetto. If anything, they would be enhancing the Deaf world by exposing it to new ideas and perspectives, and the vice versa is that deaf people will be enhanced by a different way of seeing the world. Somewhere in the mix, everybody’s needs will get met, without anybody giving up.

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Deaf Awareness Week: People Of The Lie

I’ve always hated Deaf Awareness Week. It was never about who we are as people, but who we are as “sufferers” of an affliction, a medical condition, a problem, an impairment, a disability, for which some medicos and deaf awareness raisers come up with such dehumanisating terms as neurologically devastated, implanted, or users of sign language or assistive listening devices.

Defintion by being deconstructed into miniature components, rather than the whole human being.

Ever since becoming Deaf Aware, I’ve come to hate, maybe not hate, but dismissive of some of the organisations that purport to represent us. As the Devil is aware, some actually do some good work, much to his chagrin. But the problem lies in organisations that use the “jack of all trades and master of none”, approach.

I’m in complete solidarity with GOD, Saltbar, Gwallgofi [friendly Leprechaun] and North Of The Stupid Line, and others, regarding RNID’s campaign, World Without Sound. It is actually quite derogatory towards Deaf people. The campaign, along with Deaf Awareness Week, does little to raise awareness about Deaf people as human beings.

RNID, as a long standing organisation, should be sensitive to this.

I must admit, that parts of the campaign, such as when they Subtitled Big Ben, Piccadilly Circus [now there's a touch of irony there or aptness there], and Trafalgar Square. RNID staff or hired hacks roamed the streets with signs, banners and placards with words that simulated sounds, is actually witty. I can actually see the humour in it, but it is being used in the wrong context. I, however, used the same pictures, and recontextualised them.

Now the question that needs is answering is, why is it derogatory towards Deaf people. The answer is quite simple really. If Deaf people regard themselves as a people with a culture and language, and do not consider themselves disabled or that sound is not central to their sense of well being, then how does a campaign such as the one RNID is currently running, raise awareness about this rather big difference? How does an organisation that purports to represent just about every Deafie and deafie in the UK, insult one segment of their constituents, but running campaigns such as this? How does the RNID further the betterment of Deaf people by rehashing the medical model, to the detriment of the segment of its constituents that define themselves as a cultural group?

In my post, The Tree Of Life, The Fruit of Knowledge, Of Good & Evil, published at The Devil’s Playground, I talked about hearing and deafness being polar opposites. One being the equal of the other. That problems arose because the hearing side did not understand the deaf side. RNID’s work, while beneficial to many individuals, is not healing the rift, or closing this schism between Deaf and Hearing. Indeed, a schism can be seen between the Deaf and deaf, who are polar opposites.

That’s how RNID operates. It mines that schism between the polar opposites that are Deaf and hearing.

While awareness of the physical and emotional consequences of deafness is a necessary, it is equally important that we understand that deafness, or absence of sound, is not the bad thing it’s made out to be. Deaf and hearing are different, and there are consequences yes, but one is not better than the other, nor more desireable than the other. It’s something we have simply deluded ourselves into believing is the case.

RNID knows very well what it is doing. It is not an ignorant organisation. It’s not a truly representative organisation, sure, but it is not ignorant.

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SATIRE: Don’t Cry For Me Deaf Society

Here’s just one more for the road. You all know the musical EVITA, and the song Don’t Cry For Me Argentina. I give you, Don’t Cry For Me Deaf Society.

This is really easy, you’ll think it’s not
Let me try to explain how I feel
That I still need your love
After all that I’ve embezzled

You won’t believe me
All you will see is a CEO you once knew
Although I’m dressed up to the nines
At sixes and sevens with you

I had to spend the money, I had to go to Timbucktoo
Couldn’t stay all my life like a volunteer
Standing in the rain, rattling tin cans

So I chose freedom
Spending your money, Pretending it’s all for you
But it didn’t impressed you at all
I never expected it to, But it did me

[Chorus:]

Don’t cry for me Deaf Society
The truth is you were a convenience
All through my ambitions
My aims and objectives
I climbed the ladder
To keep my distance

And as for fortune, and as for fame
I never invited them in
Though it seemed to the world they were all I desired

They’re not illusions
They’re the solutions to life’s vagaries
The answer was here all the time
I love money and much more than I love you

Don’t cry for me Deaf Society
The truth is you were a convenience
All through my ambitions
My aims and objectives
I climbed the ladder
The stairway to Heaven

[chorus]

Have I revealed too much?
There’s nothing more I can think of to say to you.
But all you have to do is look at me to know
That every word is true!

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