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Empathy Isn’t Always A Natural Instinct When One Is The “Default”.

January 31st, 2008 | 6 Comments | Posted in Culture, History, Identity, Tales Of The Deafhood

What the hell is wrong with people? What is it about deafness that sends people off to Whoop, Whoop, in search of the Holy Grail that will provide them with the ultimate answers that will solve all our problems regarding deafness. A solution that would make the lot of the hearing parent’s [and by extension, the hearing world's] job easier. Wild and crazy Friday night, Deaf Mom of Two Deaf Children, Would Beethoven Have Wanted a Cochlear Implant?, Can Culture Argument Be Applied Equally and Why I Won’t Teach My Children ASL, among many other blog posts, leave me some serious questions as to why are we covering the same ground, that we covered 20 years ago, and still getting frigging nowhere?

I sound jaundiced I know, but I am sick and tired of listening to parents go on about unconditional love, and from what I have been privileged to witness, it is anything but. At times, it seems like one, long, continual projection of what the child should be, based on the parents image of themselves. Are we photocopying or are we creating?

If the last 20-30 years has seen an explosion in knowledge about deafness, and a greater awareness of what it is and how we can deal with it, then why are we traversing the same, tired, old debates about choice in communication, what’s the best method for teaching, and so on, and so on?  Why are we traversing the same, tired, old, ground, blithely unaware and blissfully ignorant, of all that has gone before? More pertinently, ignoring past precedence as if it has no bearing on the parents child today. “My child is unique, therefore requires a unique solution!”

With all this knowledge and experience at our disposal, one would think that we would be making better progress for our Deaf brethren, kith and kin, giving them a better world to live in, than was possible in the past. Well, I’m killjoy, and am enjoying it very much. I, for one, have a good grasp of Deaf history and a better nuanced understanding of the dynamics of the Deaf and Hearing relationship than a lot of people. With all this knowledge and experience we supposedly share, will somebody please tell me:

  1. WHY are parents [and the Hearing world] increasingly resorting to is technology to deal with deafness and its implications?
  2. WHY are Deafies continually being weened on technological measures to build their bridges to the Hearing world via cochlear implants, hearing aids?
  3. WHY the continuing emphasis on lipreading, cued speech, to achieve the same aim as in point 2?
  4. WHY, inspite of assurances to the contrary, is sign language still treated as a tool, to be picked up and discarded as the situation demands?
  5. WHY do people continue to labour under the assumption that all people with a hearing impairment are alike [the same]?
  6. WHY is the aspiration to integrate with the Hearing world done at the expense of being Deaf, and having a positive Deaf identity?
  7. WHY is the aspiration to integrate with the Hearing world still the Holy Grail?
  8. Indeed, why is more effort expended in building up the deaf child for a life where the Hearing world takes centre stage?
  9. WHY does all this technology define who we are as people?
  10. AND most salient of all, why is the irony of all these questions lost on all concerned?

I ask these questions not because I don’t understand the reasons behind the choices people make, because I do. I ask these questions not because I don’t understand why some people want to hear more, because I do. I ask these questions not because I seek to deny a person the right to seek technological assistance, because I do understand why they seek technological assistance. I do understand the reasons a mate of mine gave for why he chose to get the cochlear implant. I ask these questions, because nobody is answering them, or even asking these same questions. Instead we are are inundated with the false dichotomy of the oral, implant, lipreading skills, et al, being equated with successes.

I ask these questions, cause I am not blinded by the Holy Grail that is the Hearing World!

Community, communication and culture, The Three C’s, in the Hearing sense, are conceptually limited to audio and speech. More succinctly, they are limited to a strict reading of what the five senses mean. Sure the Hearing employ other means of communication via the other four senses: sight, smell, touch and feel, when the situation demands, and the means of communication are many, but in the final analysis, Hearing community, communication and culture is built on the one dominant underlying structure: audio and aural! The problem is that we Deafies have proven that a human being can function quite well without sound [or a heavy reliance on sound].

In spite of the advances we have made in promoting a better understanding of deafness, and proving the validity of the Deaf identity and Deaf culture, we still cling to the notion of success and esteem as human beings, let alone Deaf people, as measured in Hearing terms. We Deafies, are still being condemned to a life that is dependent on technology and a hearing world.

Technology is expensive, and unless money is no object, it quickly becomes a yoke, from which we Deafies are never free.

I find it hard not to see this obsession with technology as a solution for deafness is bordering on psychopathic violence. As a Deaf person, it’s hard not to be offended by all the rationalisations employed for why the cochlear implant is used. For all the protestations of love and affection for sign language, yet so much effort and energy is expended into programs that use cued speech, speech therapy, lipreading in a supreme effort to give their kids the most opportunities, because it is a hearing world.

Parents, we know that. Parents, those of us who are now in middle age, looking back, see the same crap being pulled today that was pulled years ago. As one blogger wrote:

“…we CANNOT view oralism with CI children as it is a completely different way of raising deaf children today.”

Oralism years ago is no different to oralism now. The intent is the same, it’s just the technology is different. If parents [The Hearing World] put half the time and energy into helping to build deaf culture, building bridges between the deaf and hearing worlds, and build a place where your deaf kids can be deaf without a reliance on audio means, their futures [and indeed, all of our futures] wouldn’t look so bleak. I don’t care what rationalisations are used, deaf kids are being condemned to a depended on technology for their inclusion, self esteem and confidence.

Sure, I’m not a parent, and don’t have the responsibility of raising and making decisions for children. But I am someone’s child. And I have bore the brunt, both good and bad, of parental jurisdiction. And like all children, I know that our parents are not God, and that they screw up somewhere along the line. More than this, I am an uncle, and unlike most uncles, I have actually changed nappies, walked the floor, cradled them to sleep, played with them, rowed with them, and know full well that I actually exert influence, and quite aware that it can be negative as well as positive. Then again, my single status makes me sensitive to parental bullshit.

For all the advances and progress, we still revert to type, when it comes to seeking solutions. It’s better to be Hearing. If you can’t be Hearing, then hear something. I don’t expect hearing people to ever, really understand. I have given up on that objective. “Empathy isn’t always a natural instinct when one is the “default”.”

If this rant offends you, too bad. I’m not impressed with the rationale that parents are putting forth as to how they are rear their deaf/ deaf children. For all their patronising protestations that it’s OK to be Deaf, the ultimate aim though, is that Holy Grail. The identification with and integration with, the Hearing world. On Hearing terms!

FURTHER READING:

On Being Deaf: Part One
On Being Deaf: Part Two
On Being Deaf: Part Three
Communication: Freedom Of Choice
Identity: Fluid or..?
Identity & Fluidity: Just A Thought
A Positive Deaf Identity: What is it?
Tales Of The Deafhood - Deaf Communities Part Two
Tales Of The Deafhood - Deaf Communities Part One
Tales Of The Deafhood - Deaf Communities: Deaf Gays And Lesbians
Tales Of The Deafhood - The Epiphany
Tales Of The Deafhood - An Introduction
More Thoughts on the Deaf Blogosphere
What is Deafhood?
Deafhood: A Process Of Self Repression
Many Tribes
In One’s Own Image: Ethics and the Reproduction of Deafness
Ethnicity, Ethics, and the Deaf-World
Informed Choice and Deaf Children: Underpinning Concepts and Enduring Challenges

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MEDIA WATCH: Sign Language Deserves Protection By Law

January 30th, 2008 | No Comments | Posted in Media, Media Watch

I really like Fintan Gaughan, known as Fin, of Fintan Ramblings fame. He is an Deafie who grew up oral, like many of us, and is learning sign [BSL] like many of us, but understands that in learning BSL and adopting Deaf Culture, it does not mean you give up talking [as in using the mouth to make sound waves] or stop mixing in the Hearing world. I’m sure he won’t stop talking once he masters BSL. Probably will turn into a visual gasbag, and slur his signs when drunk [if rumours of his reputation are anything to go by].

He alerted us to another article in the media, via deaf-uk-chat. The article is Sign Language Deserves Protection By Law. I’m not sure who wrote the article, which is OK, as far as news articles. Nice, short, sound bites. But the faux pas [just showing off my mastering of words, or not] is the commentators, Deefie Dougie, who were allowed the pleasure of expressing their well formed, malformed opinions.

I will leave you with it, to form your own opinions.

FURTHER READING:

Media Watch: DEAF BOY, 9, REGAINS HEARING [OH GLORY BE! HALLELUJAH!]
Media Watch: Aunt Agony Writes
Media Watch: Hearing People Still Don’t Get It! Part Two
Media Watch: Hearing People Still Don’t Get It!

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MEDIA WATCH: DEAF BOY, 9, REGAINS HEARING [OH GLORY BE! HALLELUJAH!]

January 29th, 2008 | 4 Comments | Posted in Media, Media Watch

Sniff! Sniff!

I’ve just been to church where I have shouted with joy to the Lord! I cried hallelujah with the congregation. I waved my right hand in the air with jubilation. And wiped the sweat from my brow.

It’s a great day people. A great day indeed. The Lord has foreseen to make a Deaf Boy Hear again.

Earlier this morning, I logged onto the net for my daily news and whatnots, when a post to deaf-uk-chat group, sent in by Fintan Gaughan, of Fintan Ramblings fame. The post in question is this article, Boy, 11, Who Was Deaf For NINE Years Regains Hearing… After Cotton Bud Pops Out Of His Ear.

I’m not going to analyse this article, except to point out the use of the continued equation of the word handicap with deaf, normal with hearing, how he struggled because he was deaf [and not because how inept the education system is], and how his poor family had to struggle, as if shouting  was not a natural phenomenon and communication other than in soft speaking tones was just so much effort. It even comes complete with a picture showing the reason for the boys deafness, and a picture showing how normal he is now.

This miraculous event happened in a  church hall of all places. Oh Glory Be!

Sniff! Sniff!

But the crux of the matter is:

“But the doctors and hearing specialists said it was wax and he would probably grow out of it.”

“I am amazed they didn’t spot something as obvious as a cotton wool bud.”

Which leads me to ask the question, were all the doctors who examined him, visually impaired? Further more, don’t they check the ears for obstructions using one of those things, whatever you call them?

Or is it, as we should note the following quote from the comments:

Who the hell was cleaning his ears and didn’t realize the end had come off the cotton bud?

Indeed, people, indeed!

FURTHER READING:

Media Watch: Aunt Agony Writes
Media Watch: Hearing People Still Don’t Get It! Part Two
Media Watch: Hearing People Still Don’t Get It!

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MEDIA WATCH: NOISY MEDIA CAPITALISES ON SILENCE

January 27th, 2008 | 1 Comment | Posted in Media, Media Watch

Media representations of Deaf people in the mainstream media, are a rare event. Rarer still, are the positive portrayals. When they come, they are big news indeed. When I read about this on GOD, I thought, “Yeah! For once we can claim, that’s an old joke!”

It is a well made ad, and fun to watch. And has been followed by some print and internet media interest in the ad. However, there is always a however isn’t there? However, I have to agree with Hilary Franklin in her post, Noisy Media Capitalizes on Silence, about the print and internet media falling into cliches to make to talk up this ad.

And having said that, welcome to Sarcasm Inc.

The cliche in particular is the use of the word SILENCE. We all know what it means, so need to go scrambling for your dictionaries. Though for hearing people, it is something out of Ripley’s:BELIEVE IT OR NOT! Their combined knowledge and experienced of Deafness has atrophied through their heavy reliance on Stereotype and Cliche. But perhaps it’s more true to say, that they are so anally retentive about all matters Hearing, that when things are done differently, such as this Superbowl Ad, they are dumbstruck by the idea of silence and in awe. It’s a WTF [Water The Flowers] Moment.

But can we expect anything more from the media? After all, their representations of Women, Gays, Lesbians, Disabled, Elderly, Ethnicity, Religions, et al, leave a lot to be desired. The only truly positive portrayals they are renowned for, is that of the white, heterosexual male! [Even there, they are cutting it fine]

Well two can play that game. Let’s crack a few Their trumpet plays only one tune. That old chestnut “Stereotypes & Cliches.” It’s number one on the Billboard charts, followed by “Silence and Silent” at number two, “It’s The Same Old Song” at number three, and “Blowing Smoke Outa My Arse” at number four. Maybe that’s what Sarah-Kate Templeton Health Editor, at The Sunday Times, was doing when she penned the piece Deaf demand right to designer deaf children? Singing The Hearing World’s Greatest Hits!

FURTHER READING:

PepsiCo Super Bowl Ad Features Silence

Silent Super Bowl ad will resonate with deaf
Pepsi hopes silence is golden with Super Bowl ad
Deaf PepsiCo workers to star in silent Super Bowl ad
Pepsi’s New Super Bowl Commercial: Silence
Pepsi ad to give Super Bowl viewers a moment of silence
PepsiCo Super Bowl commercial breaks the cacophony with 60 seconds of total silence
NAD Works With PepsiCo on Super Bowl Ad in American Sign Language
Sign Language in Advertising
Mouse: first BSL targeted marketing?

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TECHNO WATCH: Researchers Work To Perfect Computerized Lip Reading

January 20th, 2008 | No Comments | Posted in Communication, Techno Watch, Technology

Pretty soon all of us Deafies and deafies, can rest our poor, tired eyes. The latest in technology is this: Criminals Beware: Computerized Lip Reading! <Arched Eyebrows! MINE>

It took them long enough to realise that,

Lip-reading is a very difficult skill to master - human lip reading is often unreliable, even when it’s performed by trained lip readers. “We all lip read, for example in noisy situations like a bar or party, but even the performance of expert lip readers can be very poor.

Something us Deafies have always known, but Hearies in the throes of enlightened understanding, are only just discovering [or have they always known, but daren't admit it to us?] just how hard lipreading is:

It appears that the best lip-readers are the ones who learned to speak a language before they lost their hearing and who have been taught lip-reading intensively.

Really? No kidding?

And the poor buggers are so inspired by the potential applications of puter tech, that they are working hard, very hard, to make their lives easier!

Forgive me readers for my sarky post, but you know, human ingenuity knows no bounds. Further down the article, Criminals Beware: Computerized Lip Reading, there is a mention of the technology being useful, extremely so, to wait for it, “hearing-disabled individuals” [rolling eyes].
 
Is the sum total knowledge of deafness still one of “hearing-disabled individuals”? In spite of humanities accumulated knowledge and documented experiences, if it ain’t hearing, it ain’t =normal?

First of all, we are PEOPLE [pronounced: pee-pull], and we have IDENTITIES [pronounced: EYE-DENT-TITTIES]. But Hearies in their rush to appear enlightened, are frightened off using words like Deaf, or the idea that we maybe OK as Deaf people. [What the..........SIGH!]

Even if it proved useful, how many gadgets are us Deafies meant to own? How many gadgets are required to live a normal life? More tot he point, are these gadgets designed to ease the consciences of the Hearies who are can’t interact with us on a human level, so they build a gadget?

Before too long, we are all gonna have to become roadies to cart around all these gadgets that we need to help us live normal, satisfying lives. This could be a common scenario, so loaded with gadgets, that we have to hire a roadie, and send them on ahead of time [to whatever and wherever we have an appointment] where they can set up all these gadgets making the environment ready and accessible for us!

Still, it says more about their vanity, than it does about building bridges between the Deaf and Hearing worlds.

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